Pulmonary Fibrosis Foundation
Now Serving Our Community
The PCC will serve as the information hub for the PF patient, caregiver, and health care professional communities. PCC staff will:
- Make available the most up-to-date medical information
- Provide information about how to find support services, available treatments, and clinical trials
- Distribute PFF patient education materials
The PFF Patient Communication Center is staffed Monday through Friday 9:00 a.m. – 5:00 p.m. (Central Time). The toll-free number is 844.TalkPFF (844.825.5733).
At the biennial PFF Summit the Pulmonary Fibrosis Foundation (PFF) announced its plans to establish the PFF Care Center Network (CCN) and the PFF Patient Registry. These initiatives will improve the health and quality of life of patients suffering from pulmonary fibrosis (PF) and will help provide critical insights enabling the medical research community to develop more effective therapies.
Read the New Issue of the Breathe Bulletin
Watch TV Segment Featuring Pulmonologist Dr. Erica Herzog and Her Patient with IPF, John Morthanos
In recognition of Rare Disease Day on February 28, Boehringer Ingelheim sponsored TV and radio interviews with John Morthanos, who has idiopathic pulmonary fibrosis (IPF), and his physician Dr. Erica Herzog of Yale University to raise awareness of IPF. In September 2012, John was one of the lucky patients with IPF to receive a single-lung transplant. Although IPF is the leading reason for lung transplants, the procedure remains uncommon because patients are either too old, too ill or don’t survive long enough to undergo the procedure. Viewers are encouraged to visit www.pulmonaryfibrosis.org for more information.
Watch them discuss IPF on NewsWatch, a national news program that airs in more than 100 cities across the U.S.